Walking into a new and brighter life.

Walking into a new and brighter life.

The healthy me

The healthy me

Finding your way around

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This I know.................

This I know.................

Thursday, June 30, 2011

Staying awake waiting for the tooth fairy

Just a quick blog to explain my email today.

I sent in a request for information regarding Stem Cell regeneration in lungs, that a center in Sarasota Florida was conducting.

I heard back right away.  I am not sure if this is just a standardized mailer, or perhaps they are interested in me.  At any rate, I will call them tomorrow and see.

I was at Curves again today.  Still doing fine.  I am noticing each day that a new group of muscles are sore, so something must be working right.  lol
I am going to sign up tomorrow for a year.  I was concerned, having the lungs that I do there is a chance that I may have to stop the heavier work outs.  I am of course hoping not but you never know.  So, I asked them if I could get out of a contract for medical reasons and they said of course, just bring in a doctors note for their file.  So, tomorrow I will be officially a member of a gym / workout center.  :)  I never thought I would see those words associated with me again.

Layla is here tonight and she lost a tooth.  So, I am trying to stay awake long enough to play tooth fairy.  Do you know inflation and cost of living has hit the poor tooth fairy?!  The going price for one tiny little tooth is $2.00 ... and, that's on the cheap side from what I hear.

An Answer from Florida's Stem Cell Center


Dear Kellie,
We appreciate your inquiry regarding Stem Cell treatments for COPD.

Attached is educational information that you should find interesting.

We are now able to treat COPD using your own adult stem cells right here in Sarasota, FL. These innovative treatments are designed to help patients be less oxygen dependent and live a more active lifestyle.

It’s important for you to contact our office soon at (941)388-2277 to schedule your free medical consultation to determine if you may benefit from stem cell therapy.

Best Regards,
Grace Hayes

Operations Manager


AUTOLOGOUS STEM CELL THERAPY FOR COPD



Patients with Chronic Obstructive Pulmonary Disease have marked shortness of breath, lifestyle limitations since they fatigue easily, and often have difficulty walking even short distances. Frequently there are problems sleeping at night even in a semi-sitting position and a greatly increased susceptibility to Bronchitis and Pneumonia. Severe cases often require oxygen 24 hours a day and breathing is extremely difficult.


Our patent pending treatment typically consists of the following:


• Initial Physician consultation


• Physical examination


• Specific EKG, Pulmonary Function tests and vital signs


• Blood draw for Stem Cell separation


• Infusion of Autologous Stem Cells by our Registered Nurse


• Growth Factor injections


• Specialized Nebulizer treatment with supplements to enhance therapy


• Detailed follow up instructions on home administered Nebulizer treatments


• Post treatment Physician Consultation


• Prescriptions for Post Treatment Therapy


• Suggested list of supplements to enhance Stem Cells


• Diet to enhance Stem Cells


• Registered Nurse follow up the day after treatment and one week post treatment


• Supplies and samples provided to last until medication arrives by mail


• Laboratory request written for future tests per Physician’s instructions




Treatment is usually performed over a three day period. Variations in protocol may occur depending on individual patient needs. Please notify us if you have any special requirements. Our Treatment Coordinator will do whatever is possible to assist and accommodate your requests.




Burton Feinerman, MD

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Tuesday, June 28, 2011

Fight Copd with your own Stem Cells

I found this article and thought it interesting.  I sent in my information for a consultaion.  I'll let you know if I am contacted and what they say.
(Jouvence Medical)

Fight COPD with Your Own Stem Cells

For the first time autologous stem cell treatments for COPD are available in the United States. This proprietary procedure uses the healing power of your own adult stem cells combined with newly discovered agents to aid in the repair of damaged lung tissue and deliver powerful anti-oxidants to fight free radicals. This treatment method is intended to actually aid in tissue regeneration and increase air flow to and from the lungs caused by chronic bronchitis and emphysema.


Many patients receiving this treatment have reported improved pulmonary function; reduction of oxygen use; improved pulse O2 saturation; improved energy and endurance levels; increased exercise tolerance; and less shortness of breath.

Rather than just treating symptoms with bronchodilators, steroids, or nebulizer treatments; this procedure is intended to repair or replace damaged lung tissue in alveoli and bronchioles.



You too may be able to breathe easier and enjoy a better quality of life. The good news is that COPD, a chronic, debilitating, and frequently fatal disease, now potentially can be managed, controlled and slowed down. The healing power of your own stem cells could help you or a loved one diagnosed with COPD achieve a longer and better quality of life.



Some of our greatest success stories come from patients who have been diagnosed with COPD and put on medical treatment plans that have had little to no effect on their condition. Our proprietary protocol using adult stem cells has helped people right here in the United States lead more active and productive lives.

Jose Cuervo joined us for dinner tonight :)

One more day at Curves under my belt.  I have been doing 2 rotations and that seems to bring me to a good sweat and a good steady pulse of 145-156.  I still am feeling like I need to do more in the afternoon.  So far I have just thought about it.  LOL 

Today it took a little more effort at Curves.  We have had low hanging clouds and rain come into the valley and just sit here for a few days.  When that happens the air gets trapped and so does all the pollutants.  I think even when the air is heavy with summer rain it's hard to breath, and then add on top of that our air situation here and it's like breathing soup.

I am hoping that I can get used to this (exercise) being part of my every day.  So far I do well there, and have had no issues with pain at home.  I just become very lethargic and tired once I sit down.  I could easily nap if the opportunity arose. 
I have so far kept myself busy either online or in the kitchen or with Britt and Layla.  I am hoping that goes away and my body just accepts it as part of each day.  I may though just need to accept the fact I get tired easily with the added heavy breathing.  I remember "heavy breathing" being much more fun than it is these days!!  ;) lol

Which reminds me, we went to a birthday party the other night and Layla was talking to a little girl.  The girl asked Layla what that was around my face?  And, Layla in a matter of fact voice replied... "My grandma breathes special air."  LoL  I never thought about how she views this.  She never really questioned it and I never explained it to her.  Brittney will once in a while tell her to watch for grandma's hoses. 

If you think about it, we do breath special air.  Our air is so special we have to carry it around with us, pack it when we go on trips, and eat and sleep with it.  It is so special that we can't go places that won't allow our air ... Places like some airlines, swimming pools and lakes ... I am sure there are lots more .. but I think you get the point.  It hits home the concept of planning.  When your diagnosed with Copd you learn to plan even if you were never organized before you learn quickly. 

I cracked up this morning because last night before I went to bed I got the chicken breasts in the refrigerator to marinate overnight.  They marinated in freshly squeezed lime juice and Jose Cuervo a 1/4 cup of each, and some grated frozen ginger root.  I had 3 or 4 bottles (the little ones like you get on an airline) and it worked out that they were just the right amount.  I left one of them on the counter so this morning I would remember to add it to my shopping list.
Bill woke up this morning and thought I had a night cap last night.  lol  I reminded him that I can't drink with all the medication I am on.  It was funny though.

I might add that the chicken tonight for dinner was moist and delicious!  I am doing my best to come up with different and tasty things to do with Chicken.  Bill is turning back to beef, and I just can't eat it.  Or at least not every day or even every week.  A special meal once a month would be O.K.. 

I seem to have accepted the new healthy eating idea much better than he has.  Even though he has also lost weight.  I am sure eating lighter in the summer will be much easier than trying to stay away from heavy things in the cold winter months.

Saturday, June 25, 2011

My pity party

I was in one of those moods today.  Not exactly a pity party, but pretty close.  Yesterday had been such a good day for me going and working out successfully, today I just couldn't get a grip on.

I was upset because the kids (Britt and Fernando) were bringing me a load of top soil for my raised beds and I couldn't help.  She bought me a bunch of flowers that needed planting and I couldn't do it. 

We were going to go to the park today with the family (Britt, Fernando, Layla and Maria (Fernando's mom) ) and I cancelled on everyone this morning.  There was an old car rally and every year they all have a show and shine in the park and are given awards.  There is live music and little booths.  This year I just didn't think I could walk it.  I was planning on just taking a blanket and sitting around while everyone walked through the cars, then I thought No... I don't want to be planted on a blanket all day.  It was selfish of me, I know... but I really get tired of being the odd one out all the time. 
Ugh... this is a pity party!  :( 

I just get frustrated.  I don't want everyone else to have to do my yard work for me and planting.  I appreciate what they do, but it's hard to just sit and watch.  

I promise I will get a good nights sleep tonight and work on my attitude for tomorrow.

Friday, June 24, 2011

I did it

As nervous as could be I walked into CURVES today and met with the entire staff.  The owner wanted all of them to meet with me and get comfortable with me being there.  I appreciated that.  I told them that I know my body pretty well and with my doctors direction I know how far to push myself.  After we chatted about 20 minutes I began to work on the machines.

Honestly, the hardest part of it was not getting tangled up in my cannula.  I found out quickly that there are certain machines that just don't work with a lung disorder.  Those I will work around and avoid.  All in all they were pleased with what I could do, and I was relieved that I could actually work up a sweat. 

They are closed on weekends so it will be Monday through Friday.  I would like to work out in the mornings, but they say that is their busiest time.  So, I will have to see where I can fit in and not slow everyone else down.

I am happy with myself.  Even there though one of the women who work there told me I am such an inspiration to everyone there.  That just makes me want to cringe.  It is not that I don't think of it as a compliment, it just makes me uncomfortable.  There are times I don't want to be someones inspiration, I just want to be me.  Do you understand that? 
Being an inspiration to someone puts pressure on me to continue to push forward, and believe me there are days where I would like to bury my head.  I guess it's a blessing in disguise.  It keeps me going.

They took measurements and I weighed in.  They weigh in only once monthly and take measurements then also.
I had gained 1 pound since my last Weight Watchers weigh in.  I will begin Curves weighing 194.2 .  I hope this will help me push forward in my weight loss and my body mass.
As always I will keep you informed.

Tonight I am tired.  I have already taken my meds and it's time to put my bones in bed.  I go to bed with the satisfaction of a new beginning.  :)

Back to CURVES, wish me luck

Yesterday I went to the nursery and bought some tomato plants and a few flowers for the pots on my porch.  It's my way of gardening without expending too much effort.  I miss having flower beds and doing yard work.  Bill does his best, well ... he mows and plants for me.  His idea of weeding is breaking off the weed above the surface, only to have it grow back in 2 days.  lol  I just squint my eyes these days.  I had a flower bed in the back yard that was full of different colors of Iris in the Spring and Roses in the Summer.  Now the Iris have overgrown and needed to be separated long ago, the roses need to be pruned correctly and all the dead wood cut off.  And, grass and weeds have taken over everywhere.

It just is necessary for me to realize things will not be like they were before, even in my garden.

Today I am going to CURVES for my first work out.  I actually leave in just a few minutes.  I am nervous.  I want so badly to be able to physically go work out on those machines.  I actually just don't know if it is possible.  I remember a year and a half ago it was difficult, which makes me think now it may be too much.  I am hoping I can just go at my own pace and things will be fine. 

I will let you know how things go.  Wish me luck!

Wednesday, June 22, 2011

Laying on the floor and a new plan

I have made a decision regarding my diet and weight loss "plan".  Today was my weigh in day at Weight Watchers and I didn't go.  I am hoping I am making the right choice and not setting my weight loss progress on a backward path.

Right after I was first diagnosed (2 years ago) I joined CURVES (more on my last experience a little later).  For those of you who don't know what it is ... it is a Gym for women only.  It has 8 different machines or "stations" to work out at for a timed period, then you rest for a period of time between each station.  By rest I mean ... some women "jog" in place, others walk in place...it's just a resting point.

They weigh in once a month and take measurements.  I still am using the bodybugg system which tracks my caloric intake, calories burned and keeps track of my weight and measurements. 

The only thing I was using Weight Watchers for is to go weigh in once a week in front of people to hold me accountable.  I never followed their "diet" program.  I believe that I can get more benefits from CURVES than I got from Weight Watchers.  They also Weigh me and keep a log of my weight loss or gain, but they also take measurements ... and I have the use of all their equipment.  Sounds like a no brain-er to me.  Oh yeah... and it will cost half of what Weight Watchers cost monthly.

I just am finding that with my trampoline I am losing good inches from my lower body, but am not working out all my muscle groups like I will at CURVES. 

As Paul Harvey would say .... "and now the rest of the story" ...
I mentioned I joined CURVES shortly after I was diagnosed about 2 years ago.  I was still very sensitive about having the disease and the way I perceived people felt about those who had emphysema.  When I joined I had to fill out a short form telling if I had any physical problems.  I mentioned that I had a failed back surgery and spinal cord implant, that I had some arthritis in my lower back (probably from surgery).  I mentioned that I suffered from bouts of Fibromyalgia, and then I mentioned I had Copd/Emphysema.  The manager asked me if I would have any limitations and I told her no, only that I would most likely have to go a little slower than most of their clients.  At that time I was not diagnosed with Sinus Tachycardia (rapid heart rate). 

So, for the first 3 days I woke up early in the morning, dressed in my work out clothes, grabbed a bottle of water and was off to work out.  I would work my way around their "stations" or machines and between each I would mostly just stand and sway back and forth, still moving but for the most part I was trying to catch my breath before I got to the next machine.

The 3rd day I worked out with a woman who I chatted with a little when my breathing would allow me to move and talk at the same time.  She told me she was a nurse and it had come up in conversation with one of the ladies who worked there that I had COPD.  She asked me about it and I told her I had severe emphysema and Copd. 

The 4th day I was working my way around the stations again and the nurse was there.  She came to me and asked if she could take my pulse.  She said I was showing signs of distress.  (lol YA THINK!! I am working out here!!)  So, she took my pulse.  To make a really long story short ....
that day and 2 other days she had me laying on the floor with my knees bent taking my pulse and "coaching me" on how to breath.

Well, I was ashamed ... humiliated ... irritated ... take your pick ... and so I didn't go back.
I just wanted to work out with everyone else and be treated no different.

So, wanting now to go back I called and talked to the owner.  I found out she is a new owner (or new since I had been there).  I told her about my last experience and told her now I would be bringing an oxygen bottle with me.  I told her I would get a doctors release. 
She said she would like to meet me and have me meet her other staff members so they would all be informed as to my condition and not be alarmed.  She also mentioned that the nurse was still a member and if she came to me and wanted to take my pulse again how would I react.  What a great question!  After thinking about it I told her I would thank her for her concern but that I knew my limitations and would try and reassure her.

So... I am going to start Friday.  I will be sure to blog about how it goes and how I do on the machines.

I called my Primary Care Doctor and spoke with her assistant.  She said that I could stop in and pick up the release form today.  They are so good to me and are always so prompt with things that I need.  I am really lucky to have such great doctors.

Tuesday, June 21, 2011

Southwestern-Style Watermelon Salad

                                 This was our Salad last night. 

I made home-made Re-Fried Beans and Tomato, Onion, Avocado and Lime Salsa.  Then roasted 2 chicken breasts with Cayenne Pepper and Cumin on them.
Laid out a bed of shredded lettuce, a spoonful of beans, sliced chicken breasts then topped it off with Salsa.  It was wonderful.  Too bad we ate it before I thought to take a picture!  LoL

This was the salad that went with it.  It would also be a awesome and refreshing desert.

1/2 Tsp ground cumin

1 Tsp salt (or to taste)
1/4 Tsp chili powder
1/4 Tsp cayenne pepper (or to taste)
4 cups watermelon balls or cubes


First using a melon ball-er accumulate 4 cups of balls (bite size)


Right before serving blend above spices and shake over melon and gently mix until thoroughly covered then spoon into glasses.


Once spices are on melon it needs to be served immediately.

You will be pleasantly surprised how well these flavors compliment each other.





Monday, June 20, 2011

Getting to sleep with Copd

If you have chronic obstructive pulmonary disease (COPD), you know that getting a good night's sleep can be difficult. This can be a significant problem, since sleep is especially important when you are dealing with an illness like COPD. Sleep allows your body to repair itself, and not getting enough rest can weaken your immune system. COPD: Common Causes of Sleep Problems






"What COPD patients have to do is find out the reason that they are not sleeping," says Jane Whalen-Price, PT, director of rehabilitation services at National Jewish Health in Denver. "Do they cough? Do they snore? Do they gasp? Is it the reflux that is bothering them?"


Some factors that may interfere with sleep in COPD patients include:


-Sleep position:
Since people with COPD may find breathing more difficult when they are lying down, they often sleep in an upright position. But sitting up makes it hard to fall asleep and stay asleep.

-Medications:
Some of the medications used to treat COPD can keep you up. Others cause you to make frequent trips to the bathroom, interrupting your sleep.

-Mental health:
People who have COPD are at increased risk of emotional problems, such as depression and anxiety, which often lead to sleep problems.

-Sleep-related breathing changes:
When you go to sleep, your breathing slows and your respiratory system becomes less responsive to stimuli. This is not usually a problem for healthy people, but it can cause sleep disturbances in people who have COPD.Sleep apnea: About 10 to 15 percent of people who have COPD also have sleep apnea, which is when your breathing is interrupted during sleep. Sleep apnea can result in loud snoring, frequent awakenings, and severe sleepiness in the daytime.

-Acid reflux:
It is estimated that more than half of COPD patients with advanced disease have gastroesophageal reflux disease (GERD). The acid reflux in GERD can lead to heartburn and other symptoms, causing you to wake up often at night and sleep restlessly. COPD: 5 Tips for Better Sleep


There are a number of steps you can take to help you get a good night's sleep if you have COPD:

They include:


-Adjust COPD medications:
After assessing your symptoms and sleeping complaints, your doctor may be able to adjust your medications so that you will sleep better. For instance, when you are getting the optimal dosage of bronchodilator therapy, you will be able to breathe easier at night while you sleep. Never make changes to your medications without first consulting your doctor.

-Add oxygen therapy:
Nighttime oxygen treatment can sometimes make it easier for you to sleep.

-Treat underlying infections:
If you have an underlying problem, such as a respiratory infection, that is making it difficult for you to sleep, getting treatment can improve your rest.

-Try sleep medications:
Your doctor may prescribe a sleep medication that will help you sleep better. If you have COPD, always consult your doctor first before taking a sleep medication.

-Practice airway clearance techniques:
Your doctor or respiratory therapist can teach you airway clearance techniques that may help you sleep better.


General Tips for Better Sleep


Regardless of your COPD status, here are some tips that may also help you get a good night's sleep.


-Reserve your bed for sleeping and sex only. Avoid watching TV, reading, or just lying awake in your bed.


-Get out of bed if you are not able to fall asleep within 20 minutes. Do something relaxing until you feel sleepy enough to go to sleep.


-Avoid napping so that you will be sleepy at bedtime.


-Get regular exercise, but not in the two hours before bedtime.


-Make sure your bedroom is quiet, dark, and cool.


-Don't drink caffeine in the five hours before you go to bed.


-Keep a regular sleep schedule, going to bed and waking around the same time each day.


By being aware of the common causes of sleep disturbances in COPD patients, you can arm yourself with strategies for getting a better night's rest. A good night's sleep can help your body get stronger and be better able to fight the symptoms of COPD.

Mobility with Copd

As anyone who has the condition can attest, chronic obstructive pulmonary disorder, or COPD, can have a profound effect on your quality of life. You may find it more difficult to go about your daily activities, which can make you feel quite limited. But even though COPD does impact your ability to get around, it’s essential to keep your mobility — for both your mental and physical health.



Janet Liberty of Kutztown, Pa., has had chronic obstructive pulmonary disease (COPD) for more than 20 of her 71 years. But this grandmother of nine and great-grandmother of three says she doesn’t let her health put a crimp on her lifestyle. Like many people with COPD, she uses mobility devices to help her get around.


Liberty has a walker with a seat. “I take it with me whenever I go somewhere I know I may be walking a lot and, whenever I get winded, I just put the brakes on and sit down,” she says.


Liberty, who has chronic bronchitis, a common form of COPD, keeps the walker in the trunk of her car so it’s always available when she needs it. “It weighs about 13 pounds, which is just about what I can lift out of the car,” Liberty says. On a recent Red Hat Society shopping trip to Lancaster, Pa., she let a fellow member who had just had a knee replacement borrow her walker. “Quite frankly,” she recalls, “I wished I had used it for myself.”


COPD Mobility: Consider a Motorized Wheelchair


Vicki Siegfried, RN, of Sacred Heart Visiting Nurses in Allentown, Pa., says COPD patients should be as active as possible because the stronger their muscles are, the less oxygen they need to use. Medical equipment, like wheelchairs, walkers, and scooters, can help COPD patients maintain the mobility they need for an active lifestyle, Siegfried says.


Motorized wheelchairs may be best for COPD patients as many find their COPD impairs their ability to propel a manual wheelchair. If you are on oxygen, you will need a wheelchair that accommodates your unit. Liquid portable oxygen is available in a very light device, making it practical for ambulatory systems. “Whoever provides care for you on a regular basis can help you determine which device is best for your situation,” says Norman Edelman, MD, chief medical officer of the American Lung Association.


“There’s a lot of equipment out there that people aren’t aware of,” Siegfried adds. Home medical equipment companies can help you find the best devices for your situation, and the oxygen suppliers also often will have good advice. There is a wide range of options available, with an equally wide range of features, so it’s important to do your research before buying.


Siegfried says some COPD patients may find a walker works for shorter trips and wheelchairs for longer trips. “We generally don’t suggest using scooters as much in the home,” Siegfried explains.


COPD Mobility: Check Your Insurance Coverage


The more bells and whistles the wheelchair or walker has, the less likely it is to be covered by insurance, Siegfried says. “Insurance may cover part of it, but COPD patients may have to pay out-of-pocket for some of it as well,” she adds. For the device to be covered in part or in whole by Medicare, you will need a prescription from a physician.


Liberty, who only uses oxygen at night when she sleeps, didn’t even look to see if she had coverage for her walker. “I paid for it myself,” she says, “but I didn’t mind because I wanted to have it available to me.”

6 Keys to living with emphysema

One of smoking's many adverse effects is the risk of developing emphysema and COPD, or chronic obstructive pulmonary disease.



Emphysema is one of two types of COPD; the other is chronic bronchitis. If you have emphysema, it is likely that the air sacs, or alveoli, in your lungs are damaged. As a result, your body is not getting the oxygen it needs to function properly.


"Think of COPD as a spectrum of disease, with chronic bronchitis on one end and emphysema on the other," says Jeffrey Michaelson, MD, a pulmonologist with Piedmont Hospital in Atlanta. "COPD-related disease is most frequently caused by smoking cigarettes and first starts to manifest symptoms usually by the mid-fifties in continuous smokers."




*Telltale Emphysema Symptoms


Emphysema affects your body in many ways. Typical emphysema symptoms include having a hard time catching your breath — especially while exercising — and a chronic cough. "Symptoms of emphysema deal with progressive shortness of breath that limits activity," says Dr. Michaelson.


Many people with emphysema also have chronic bronchitis, so an emphysema diagnosis may include chronic bronchitis symptoms as well. Chronic bronchitis brings with it the continual production of sputum associated with cough and chest congestion. Michaelson notes that the majority of patients fall somewhere in the middle of the COPD spectrum and display symptoms of both diseases.


*Finding the Right Emphysema Treatment


Emphysema and COPD can't be cured, but the right treatment can improve your emphysema prognosis as well as your overall health and well-being. Taking these steps will help:


*Get a diagnosis. If you're unsure if you have emphysema and COPD, start by getting a diagnosis. Only then can your doctor begin to help you. "If you feel that you or someone you know over the age of 35 may be experiencing symptoms, a brief, five-question screener will help determine if that person might be at risk for COPD," says Michaelson.
Start emphysema treatment.  Your doctor needs to be your primary source for getting a handle on emphysema treatment, says Michaelson. "It is important to seek treatment once diagnosed since COPD is a progressive disease. It can lead to frequent hospital admissions, poor quality of life, the need for supplemental oxygen, or a ventilatory assist device worn at night to help maintain effective breathing while asleep," he says. Treatment — especially quitting smoking — along with using inhalers, helps lessen symptoms, delays disease progression, and enables patients to maintain an active lifestyle. 

*Quit smoking.
If you want to have a better emphysema prognosis and prevent the progression of emphysema symptoms, no step is more important than to quit smoking. "Stopping smoking reduces the inflammation and lung damage that leads to worsening of COPD and emphysema," says Michael S. Nolledo, MD, an attending pulmonologist at the Deborah Heart and Lung Center in Browns Mills, N.J.Avoid other irritants. Tobacco smoke isn't the only irritant that can exacerbate emphysema and COPD. "Most COPD in this country is related to smoking, but only 20 percent of smokers develop significant COPD," says Byron Thomashow, MD, medical director at NewYork–Presbyterian Hospital in New York City and chairman of the COPD Foundation.

 "This suggests that other genetic or environmental factors must also play roles." Some potential irritants include cold air or poor air quality days in your region. 

*Keep immunizations up to date. Michaelson says that this is a critical step for avoiding complications to emphysema and COPD. Flu and pneumonia immunizations are especially important.

*Do the right exercises.
Both breathing exercises and regular cardiovascular exercise like walking are critical to curbing symptoms and having a good emphysema prognosis. Get started by doing these exercises in a program led by a trained professional before you branch out on your own. "Exercises are best managed under the guidance of a pulmonary rehabilitation program that involves not just specific exercises, but disease counseling as well," says Dr. Nolledo. "COPD patients who complete these programs have been shown to have significant improvement in their shortness of breath."

 Because emphysema symptoms will worsen without treatment, it's vital that you work with your doctor to manage your condition. Taking care of yourself and taking control of your symptoms will give you the best possible prognosis.

Exercising with Copd

For the 12 million Americans who have chronic obstructive pulmonary disease (COPD), exercising can be challenging, especially during spring and summer when conditions like humidity and heat can make breathing more difficult.



But regular exercise is also vital because it can improve the way your body uses oxygen, increase your ability to perform physical tasks, help you lose weight if you need to, and improve your overall feeling of well-being.


When you exercise regularly, you will enjoy less shortness of breath and better quality of life, says Barry Make, MD, a pulmonologist and co-director of the COPD program at National Jewish Health in Denver and professor of medicine at the University of Colorado. These are great reasons to get moving, even if you struggle with breathing at times.




COPD and Exercise: Getting Started


"Before they start an exercise program, COPD patients need to see their physician and get approval," says Dr. Make.


If you don't know where to start, your doctor or respiratory or physical therapist can help you develop an exercise program that works for you. "For COPD patients, we recommend a strengthening program for major muscle groups and an endurance program for cardiopulmonary exercise," says Phyllis Dibbern, PT, a physical therapist with more than 30 years of experience in pulmonary rehabilitation at National Jewish Health in Denver.


Many COPD patients center their rehabilitation program around exercises like walking, water aerobics, or riding a stationary bike. "The key is lower extremity aerobic exercise," says Make. "Walking is probably the most important [exercise to do], and then there are also stretching and strengthening [exercises]."






-Managing Symptoms While Working Out


In addition to carefully selecting your exercise regimen, your prescribed medications can help control your shortness of breath and other COPD symptoms that may occur when you exercise. Your doctor can help you decide what medications to take and when to take them to improve your ability to exercise.






COPD patients often "use a bronchodilator before they exercise," says Jane Whalen-Price, PT, director of rehabilitation services at National Jewish Health. Bronchodilators, such as an albuterol inhaler, act to relax and open up airways. Other people may need supplemental oxygen during exercise, which can be provided through a portable oxygen unit.


-Workout Tips for COPD Patients


If you are new to physical activity, start slowly. Do something that doesn't intimidate you or require overexertion, like taking a walk. Then, build from there.


-Things to consider when you exercise include:


Warm up. Take 5 to 10 minutes to warm up your heart and muscles by exercising at a slow pace.Breathe. Sometimes people tend to hold their breath when they are exercising, so concentrate on your inhalations and exhalations when you exercise, pursing your lips while you breathe. When performing strengthening exercises, inhale before starting the move and exhale during the difficult part of the exercise.  Recruit a partner. It is important to be able to comfortably talk while you exercise, so chatting with your partner can help you keep your pace under control. Also, having an exercise partner can motivate you to stick with your exercise program.  Cool down and stretch. Balance out your exercise program with a few minutes of gentle exercise to cool down, followed by a stretching session lasting 5 to 10 minutes and stretching all of your major muscle groups.Listen to your body. Don't push yourself too far. If you experience dizziness, weakness, heart palpitations, extreme shortness of breath, or pain while you are exercising, stop immediately and call your doctor. Exercise can be an important part of staying healthy for COPD patients. With a few precautions and guidance from your doctor and respiratory or physical therapist, exercise can make you stronger and healthier and help you feel good about yourself.

The ideal conditions to live with Copd

Is the grass starting to look greener somewhere else? Americans are used to the idea that they can live wherever they like, regardless of factors such as climate and altitude. But things aren’t that simple for the more than 12 million Americans who have been diagnosed chronic obstructive pulmonary disease (COPD). COPD patients are easily affected by a number of factors associated with location, and they need to keep those factors in mind when considering a move to a new locale.



Doctors estimate there are around 12 million people in the United States with COPD. The most common illnesses associated with the disease are chronic bronchitis and emphysema. COPD is nearly always caused by exposure to cigarette smoke, although long-term exposure to other air pollutants also can prompt the disease. It is the fourth-leading cause of death in the United States.


The best places for COPD patients to live feature a specific set of conditions that make it easier to live with and treat the disease. These include:


-A temperate climate


-If you also have allergies, low levels of pollen and other airborne allergens


-Low levels of airborne pollutants


-An altitude close to sea level


-Plenty of doctors and ready access to health care


-Climate
People with COPD do best in places with temperate climates and no extreme swings in temperature, which can exacerbate symptoms and make COPD management more difficult. Cold air can cause the air passages to constrict, making it more difficult to catch adequate breath. On the other hand, hot and humid air can create resistance to airflow into the lungs. For these reasons, COPD patients should be wary of living in places with long bouts of cold weather as well as locations with extended periods of hot and humid weather.




-Allergens
Locales with low levels of airborne allergens and abbreviated allergy seasons are good choices for COPD patients, particularly those who develop seasonal respiratory symptoms from pollens. A runny, stuffy nose and increased congestion from allergies can be very difficult for COPD patients, given that they are already struggling to take in enough oxygen. Patients should be sure to investigate the pollen counts of any place they consider living. According to the Asthma and Allergy Foundation of America, locations with the least challenging allergy seasons include parts of Florida, California, and the Pacific Northwest.






-Pollutants
Clean air is a must for COPD patients. Airborne pollution can make it more difficult for COPD patients to breathe by replacing needed oxygen with pollutants. To make matters worse, these pollutants can do further damage to their lungs, irritating them and potentially triggering allergic reactions. Patients focused on COPD management should consider moving to places that have low airborne concentrations of particulates, nitrogen dioxide, sulfur dioxide, and ozone — all of which are known to exacerbate the disease and its symptoms.



-Altitude
Places located at lower altitudes are better for COPD patients' health than high-altitude locations. The air is thinner at high altitudes, forcing COPD patients to fight even harder to get enough air into their lungs. Patients should talk with their doctor before even visiting such places, much less relocating there.


-Access to Health Care
Finally, patients who need COPD treatment should consider the medical services available in any place they might live, and choose a place where they will be able to receive quick COPD treatment. COPD patients with less access to quality health care are not as well able to manage the disease. Studies have found that patients who live in rural areas with less access to health care are often in poorer health and are more likely to be hospitalized.


COPD patients need to put much thought into where they live. Choosing a place more amenable to their condition can help in the management of their disease and vastly improve the quality of their lives.

Sunday, June 19, 2011

Two days in one.

When did my trampoline turn on me?  I got on it yesterday for 10 minutes and that was enough.  I was O.K. with that and blamed my lack of commitment to just getting home and going out grocery shopping, unpacking and everything that goes along with coming home. 
Today however, I got on the trampoline this morning and it was a chore to do 15 minutes, I did though.  This afternoon I plugged in my IPod and turned up the music and got in another half hour. 

My leg muscles are sore.  It is going to take some time to get me back up  to my max again.  I did pretty well yesterday following my idea to just eat fruits and veggies for 4 days.  I did eat a power bar and 55 goldfish crackers.  LOL 
Today I ate lots of fruit and veggies then for dinner ate fish which is fine. 
I was holding off and trying not to eat protein, but found myself eating things like crackers ... so to save myself I decided protein may stave off hunger and it did.

This should be a warning for me of how easy it is to slide right off the eating healthy and exercising program and going back to my bad habits. 
~~~~~~~~~~~~~~~

The above was last night.  I will finish this quickly.  Again today I was on the trampoline but for a very short time.  It feels like my fibromyalga is coming on again full force.  I wish I knew what makes this flare up?  I have pain meds for it, and it takes the pain away rather quickly, it also however takes away all my energy.

I hope all the dads had a wonderful fathers day.  I woke up early this morning and got Layla and I dressed and off we went to shop for Bill and Fernando.  We bought them both shirts and Layla picked out some cards.  We were back home about the time Bill woke up. 

I am on my way to bed and it's not 8:00 yet.  Yawn... I just can't keep upright any longer today.

Friday, June 17, 2011

A relaxing trip

We had such a nice time in Bend.  I love the little city and being able to spend time there with my brother is just a bonus. 

Tuesday we drove up to the area we spread Mom's ashes and hiked up to the spot.  I climbed easily.  That is not to say I didn't stop and rest a few times to catch my breath on the way up, but I did better than I thought I would have.

Her ashes were scattered here because her brother was also here.  They were so close.  And, frankly... my step father didn't have a clue what to do.  Enough of talking about him... it just sours my mood. 
The tree where we scattered her ashes beneath is a beautiful dead snag (if you appreciate things like that) that leans out over a awesome canyon and also is in full view of the Three Sisters Mountains near Bend.

The plaques on the tree are there for Mom, her brother and his wife.
There is a hanging angel below the plaques with bells that ring in the wind.

A Terracotta angel lays beneath the tree



A portion of the Three Sisters that are the backdrop of bend.  One mountain didn't make it into frame.


We had a great time.  It never is long enough and it's always sad to say goodbye to my brother.  We promised to get together again near the end of summer.

I ate WAY too much.  The food was great but I didn't watch any calories consumed during the trip.  I ate macaroni and cheese with Fontina, Asiago and white cheddar cheese... OMG... every bite was a guilty pleasure!

Like every outing or trip this one took planning.  We had to go and pick up 12 oxygen canisters, pack up my home concentrator and bring extra cannula's.  As it was we got to the hotel room and brought in the concentrator only to realize that I forgot the adapter that connects the cannula to the tubing from the concentrator.  So... Bill being the fix it guy he is used a pen and some duct tape and made it work.  LOL  Give a guy duct tape and he can fix anything!!

Anyway... I had a great trip, got to spend some quality time with my brother, and got to enjoy the town of Bend.  Now it's time to get back on track.
It's nice to be home.

Now that we are back home I am spending the next 4 days eating nothing but fruits and veggies.  I need to kick start my weight loss again.  I know I ate too much of the wrong food because my hands and feet swelled from the salt, and my pants got a little snug from all the fattening food.

I have my trampoline back out and will begin to use it as soon as I finish this blog and get back into exercise too.  I have been slacking in all areas of good health for over a month now.  It really does take work and consistency to maintain a healthy body. 
For us with Copd we just need to figure out ways to exercise that works for us.  I think everyone is different as to what they can personally handle and how far they can push themselves. 
I know from experience I need to listen to my body and see the signs of over-exertion.  The first sign of my chest tightening and burning I need to stop.  If I push on (which I have in the past) then I am unable to do much of anything for the next 3 or 4 days.

It's frustrating to live in a body where the mind is willing to push forward but the body is telling you to stop.  Like anything else associated with Copd we need to learn what works for us, to be aware of our limitations and to accept smaller goals.

Saturday, June 11, 2011

Interview Questions

This was done on August 22, 2010 for a COPD site I belong to.  It is interesting to read my answers then and compare it to nearly a year later. 

INTERVIEW QUESTIONS – extensive answers are unnecessary and any question is optional to answer. Please return within the next couple of days.


1. When and what were you doing when you first noticed symptoms? Like most smokers I noticed shortness of breath and colds taking longer to get over. Those symptoms continued for probably 4 years until diagnoses.

2. What were the symptoms indicating the diagnosis? Shortness of breath when walking, a cough that wasn’t going away, coughing up colored phlem.

3. What did you think at the time? I was scared, angry and fearful of dying. or what have you thought since? It is burdensome to family members or caregivers. I am damaged goods.

4. What experiences have you had with the illness? I am on fulltime 24 hours of oxygen. Walking in public with a cannula around my face makes it impossible to keep private my struggles.

5. Any humorous stories? A few coming to the end of my tubing stories, having my head jerk back because I ran out of O2 tubing while walking through my house. Not so funny anymore, now just irritating.

6. What has been your inspiration after diagnosis? My daughter and granddaughter. I want to be well for them.

7. How have you coped with your challenge (positive)? I write. It helps to get my feelings out. I started a blog. http://asiliveandbreathe-kellie.blogspot.com/

8. What do you think now? I know my time is limited. I would guess with good health about 15 years MAX. It’s odd to know your time here is fragile. I know from here on out it will only get worse, and I will lose freedoms that I now take for granted.

9. What else do you know about your illness you would like others to know (undoubtedly you have learned a great deal)? That cigarettes do kill. I am proof of that. That when people ask me what it’s like to have emphysema…. I tell them, at my worse (so far) it’s like being underwater and running out of air but not getting to the surface in time.

10. What memorable events transpired in your life to bring you to the point where you are? I watched both parents struggle and ultimately die of complications of emphysema, so to now walk in their footsteps is frightening.

11. How do you think your challenge has impacted you? Like everyone says… When faced with mortality, you find out what truly matters, and it’s not money or big houses or nice cars… all the things we spent our lives accumulating. It’s family and friends and memorable times spent with them.

12. (Brag!) Would you like to talk about your successes? My only success I have at this moment is my blog and it’s ability to reach those who also suffer. Or, to have their family members thank me for writing so honestly so they can learn what their loved ones are going through.

13. What might a typical day for you be like? Out of bed around 9:00 a.m.. Have coffee, shower, get on the computer, maybe go shopping with my ex husband. Watch T.V. or spend the evening with my granddaughter. Go to bed around 10:00.

14. What do you look forward to? Spending time and laughing with family. Having good breathing days and walking through the stores.

15. Given everything, what do you think about life experiences? I wish I would have enjoyed my early adult life more. I wish I hadn’t been so focused on making money. I wish I would have had more kids.

16.

17. What might be a theme throughout life (family, education, excitement…)? You only have one chance at a good long life. Take care of yourself and your body while you’re young. Don’t make fun of those who eat veggies and ride bikes or jog. Get up and chase them! Give up bad habits. Because they are bad… otherwise they would be good habits.

18. Would you like to talk about your family (parents, siblings, children)? My husband of 27 years and I divorced last August. I knew what was ahead for me as far as health and costs. I didn’t have insurance and everytime I applied I was denied for pre-existing conditions, so we divorced so I could receive SSI and get our state medical insurance.

After 27 years I had to take off my wedding ring because I was diagnosed with Copd and severe Emphsyema. I didn’t want to bankrupt our family. I wanted to be able to spend the remainder of my life doing things that brought me and my family joy… not worrying about finances.

That is my biggest regret.

Friday, June 10, 2011

What is the " Suffocation Alarm"?

Our brains are designed to protect us and keep us alive. Deep in our brain is a region that constantly samples our blood to be sure that we are breathi...ng well, and that we are breathing clean, "healthy" air. If it detects anything wrong with our breathing or the air around us, it can send out an alarm signal that something is wrong. This might feel like as sudden rush of anxiety, or even panic. This feeling is supposed to prod us to get up and get away from whatever dangerous situation has caused our breathing to set off our "suffocation alarm".  

 With COPD, you regularly have trouble breathing and your suffocation alarm can become "hyperactive". You might feel anxious and edgy. Even little changes, like strong odors or being hurried, can fire off a full suffocation alarm signal. This is the reason that patients with COPD frequently complain of increased episodes of panic and anxiety.   This response is common and does not mean that there is something wrong with you mentally or emotionally.  


 With help from your doctor, there are a number of things you can do to "reset" your suffocation alarm. These may include: 

* Breathing Training * Counseling * Medications   Managing Worry   Fears and worrying are common problems for people with COPD. These can be caused by your "suffocation alarm" or result from all the changes that have occurred because of your COPD. Below is a list of some of the ways that "too much worrying" can show up. Print this page and check off those items on the list that you feel apply to your experience:  
* I have trouble getting to sleep because I’m worrying.
* I can be sitting quietly and suddenly become short of breath. * I almost always have a nagging worry about when I’m going to have an episode of difficult breathing. * I seem to be getting more and more frightened to leave the house. * I’d rather stay home so I can avoid being exposed to the "dangers" out there, e.g. people’s germs or excessive perfumes.
* I’m frightened of getting onto elevators, airplanes, or bridges and will go out of my way to avoid them.
* I walk around feeling as if something bad is going to happen.   If you are experiencing any of these symptoms or the following feelings, talk to someone on your treatment team and you'll get help.   It is also not uncommon for people with COPD who are depressed or feeling overwhelmed by the stress in their lives to want to "take a break" from being sick. At these times they may find themselves not paying enough attention to the illness, or on some level denying that they even have the health problem. They may notice some of the following (again, check off the ones that apply to you):  
* I frequently overextend myself and pay for it with worse symptoms the next day or two.
* I try to use as little medication as possible, and as little oxygen as possible, even when my doctor wants me to use more.
* Sometimes I pretend I don’t have COPD, even in situations when I know it might be important to let others know. * When I’m feeling "hassled" by my COPD, I drink more alcohol than I should because it lets me forget about the COPD.   What is "An Ideal Level of Worry"?   The fact is that there is an "ideal level of worry." At this ideal state, you understand that you have a chronic and challenging illness. You know there are things you can do that will help and hurt your experience with the illness. Over the long course of COPD you will likely go through periods of time when you worry "too much" and other times when perhaps you should give your illness more consideration. These fluctuations are absolutely normal. It is important to find the "just right" amount of worry that can help you keep your life and your illness more in balance.  

This information has been approved by Rachel Norwood, MD (September 2006).   Note: This information is provided to you as an educational service of National Jewish Health. It is not meant to be a substitute for consulting with your own physician.   © Copyright 2008 National Jewish Health

Thursday, June 9, 2011

Hi there young lady!! :)

I woke up this morning slowly and stayed laying down while I took inventory of how I felt.  I decided before I even got out of bed that I would "buck up" and be a big girl and no matter how I felt I was going to be up and about today.

To be honest, my chest hurts my throat feels coated and swollen.  It's not of course, it just feels like that.  I shouldn't have a fever I have been on anti-biotic for a week now, and have a week to go.  You know, I just feel sluggish. 

We went to Layla's talent show this afternoon.  2 kindergarten classes doing what they feel is talent.  It was SO cute.  Layla got a cheerleaders uniform and did a cheer.  Some of the kids sang, played piano (chopsticks), danced and some made up their own songs... some got up and once on the stage decided that they didn't want to perform.  They got applause anyway.  LOL

We sat in the front row so we could take good pics of Layla.  Britt said she got 2 pictures and 1 was good.  I'll post it when I can get it.  While we sat there this little boy about 4 maybe stood beside me with his older sister.  He had his arm around her waist as though to lead her.  His hair was roughed up .. he looked like Dennis the menace only so much more smooth.  He looked at me, I looked at him and he said......... "Hi there young lady"!!  Oh My God!  I wanted to hug him.  How cute is that!!

Tonight I am calling it a night.  It's been a long day and I will be glad to get this one behind me. 

Wednesday, June 8, 2011

Not feeling well

I am not feeling well tonight.  This afternoon I layed my chair back and wanted so badly to take a long nap.  I can't sleep in the afternoon or I will be awake all night.  I think my body was telling me to sleep. 

My chest is tight and I have a cough that brings up nothing, just a dry cough. 

I just took my p.m. pills and will be off to bed.  I am hoping this turns out to be nothing.  I really don't want to cancel my trip to spend time with my brother.

I'll let you know tomorrow how I feel.  Keep your fingers crossed for me.

Tuesday, June 7, 2011

Weigh in and Trying to stay off the floor

I got up this morning and rushed to a tanning appointment at 9:00 then Weight Watchers at 10:00. 

I gained 1.6 pounds bringing my total weight loss to 30.6 pounds.  I have been trying to lose this same 5 pounds for 2 months.  You would think I would get over it and begin to lose again.  I take full responsibility for my weight.  It is me putting every bite into my mouth. 

I am sure if I read back on this about every month at least once I would have a new idea on how to restart my weight loss/exercising ... or a new "outlook".  LoL  Well, I don't want to take the time to go back and read right now so I will just admit to it.

I have been thinking though (I see those smirks on your faces!! LOL) that this bodybugg program I am following projects my goal to be reached the first part of October I think.  I really like this bodybugg program and the tracking everything I eat.  But I think instead of keeping my focus on the number of pounds I want to get to, I want to refocus on the size and condition I want my body to be by then.  Pffft  Don't get me wrong if I get to my goal weight you will hear me yelling clear across the country!  ;)

I have been thinking seriously about going back to Curves.  In case you forgot or missed my last dealings with Curves I will retell my story. 

I joined Curves after I was put on night time O2, but before I was on it 24 hours a day.  I was on only 2 inhalers at the time and no other medication.  I barely remember those days.  So, my first day there the lady shows me all the stations and how to use each one, then rest or walk in place between each one.  I did fine the first day.  The second day I went in the morning and there was one other lady there.  We introduced ourselves to each other and I began my rotation.  She was right behind me.  On a few of the machines it shows your pulse rate and evidently mine hadn't cleared before she sat down.  I see her go to the "boss lady" and then they both head over my way.  The boss lady says (I can't remember names) Blah Blah is a retired RN and she saw what your pulse rate was when she sat down at a machine"  "She thinks it is at a dangerous level".  Then Blah Blah says to me "please lay down on the floor and bend your knees and just rest for a minute while I take your pulse."  So I find myself laid out on the floor.  My pulse never did get low enough to suit her.  I just told her I had emphysema and I was sure that played a part in it.  The boss lady says to me "it would make her feel better if I doubled my time between machines for the time being". 
I went 2 more times and then finally quit because it was evident that these women in there were so concerned they would hover over me throughout my work out.

Now I think being on O2, and bringing in a doctors note I could really benefit from their machines.  I think when I get back from Bend I will go in and talk to the manager about my concerns and see if I come back could things ease up some?  I will have my O2 cannula on and my Oxi-meter so I can keep track of all vitals.  I am hoping that may keep me off the floor!  LoL

Monday, June 6, 2011

My struggle

Tomorrow is my Weight Watcher weigh in.  I didn't go last week.  I was considering not going tomorrow and I will be gone next week to Bend, so I was thinking about just picking back up again in July.  What was I thinking?  I was so close to chucking my weight loss progress and calling it quits!!  So, I will get up tomorrow and I will go weigh in.  I am sure there will be a weight gain.  That is no one's fault but my own. 
That is one of my biggest struggles is when I am feeling fine, I am exercising while eating well.  If I indulge in something it doesn't make that big of difference because I am active and burning calories.  However, when I am not feeling well and just sitting around I don't cut back on my intake.  With weight gain comes depression, and self doubt.  I don't want to fall into that hole again.

Time to "put on my big girl panties" (lol, Brittney says that sometimes...seems to fit here!) and take responsibility for a weight gain and get back on track again.  Warm weather is here and that should make it easier. 

I struggle sometimes with just how honest and personal I can be with this blog.  I will discuss this only because I think it is something everyone with a severe disability struggles with.  Sex. 
I have a difficult time seeing myself as a sexual being anymore.  That is my confession.  When I can go on and not look in a mirror, or forget that there is a cannula around my face I am fine.  I feel feminine and sexual.  When I then look in the mirror or remember my cannula it stops all thoughts of a romantic night.  I find it hard to believe that Bill can overlook the cannula and see me in a sexual way.  He says it doesn't matter and I am still beautiful. 
Is this my hang up alone?  I have kept my cannula off and nearly passed out.  That taught me a lesson.  I am tired of being needy, or even have the suggestion that I may be needy.  I want to be the strong, self sufficient me.  The lover that Bill remembers and not the broken one that shows up now.  Boy ... That says a lot doesn't it?! 
There are probably many many more reasons why someone with emphysema or copd or any disability struggles with their sexuality.  I have bouts of depression which is a real side effect of my disease.  I have weight issues, from years of bad choices and little exercise.  I have real pain, which doesn't show but is there.  I could go on... but I think you get the point. 

I just figured if this is an issue for Bill and I to work out, then I can't be alone?  Can I?  I am finding with the progression of this we are having many issues, Bill and I. 
I am doing my best to get used to turning my chores over to him without guilt.  He now does almost all the laundry.  Well he washes and dries and I help fold and hang up.. but this is something I always have been very picky about.  He is doing all the yard work because I can no longer mow ... I don't have the stamina for it.  All the heavy lifting is his now.  Once in a while I get stubborn and will move the furniture around.  It slides easily on the carpet.  ;)  I just feel like I am not holding up my end of the bargain.  And, that independent evil Kellie comes out and does things she knows she shouldn't. 

There are those moments I am reminded that I have this disease because I would not quit smoking like he repeatedly asked.  I take this reminder badly.  I am weighted down with guilt anyway, and being reminded of why I am like this frankly pisses me off and automatically puts me on the defensive.  It's one of those weak spots a spouse has ... you know the one you know you can go to when you are fighting or you know will sting just the right amount?  Or, is it just my marriage that we carry that weapon?  We actually fight less since my diagnoses.  And when we do, it's always for the same ol tired arguments.

I am looking to the future.  I am hoping for a time when I have finally, once and for all realized this is the new me and accept it.  I go for periods of time just fine and then I just want to SCREAM ... This is not me!!  The me I know was fearless, independent, strong and sure of myself.  I see glimpses of that person once in a while now.  I miss her.

Saturday, June 4, 2011

Long time no see

I have had such a hard time getting here.  Sorry. 
Britt and Layla and her dog (a miniature Australian Shepard) moved in for a week or so.  We just finished moving them into their new house today.  I love her house.  It's a 2 story split level, which kind of makes it a 3 story.  It's in one of the best neighborhoods in town.  I told her I was jealous of her new house and she laughed and said good!  :)  I am so happy for her.  They are on the road to a great life.  She will graduate the 10th with her CNA license, have about 10 days off then back for her summer schedule, and into her nursing degree.

I am doing pretty good.  I have had a secondary infection creeping around through my body.  It has left me tired and at times feverish.  It was a cyst that was on the back of my right shoulder just in a spot I couldn't see it.  I was taking a shower the other day and just having water run on it was painful so I called the doctor.  She was quick to give me antibiotics and told me to watch it. 
I guess my immune system is low due to the heart medication I am taking.  Isn't that odd?  The medicine is helping my heart and leaving me wide open for any bug that wants to make a home around me.

I am so hoping to get all this out of the way so we can enjoy our trip to Bend.  I am going if they have to drag my lifeless body into the hotel and shops!!!  LoL  Dramatic huh?

I have been watching my food intake (mostly) and have been as active as possible this week.  I will see what Tuesday has in store for me.  This will be one of those weeks I am not sure about a gain or a loss?

Well, I have taken my meds and it's getting to be that warm fuzzy moment, So I will say goodbye... but I will do my best to get back here much sooner next time.

P.S.  Today is my 2 year anniversary of the day I was diagnosed and the day I quit smoking.